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My neurologist is a very nice man. He listens well and is faultlessly polite. It is the sort of job where compassion and good observation are called for and he has both in abundance. I think we get on pretty well. At each appointment he asks me to run through a series of exercises to see how my Parkinson's is progressing. There's "play the piano" - hold your hands level and wiggle your fingers as if playing an imaginary keyboard. The Neurology pianoes were never going survive Andrew Lansley's sweeping NHS reforms as part of David Cameron's government's austerity measures and there is a slight downward trend in the number of organ donations in the UK. In another test he stands behind me and pulls me backwards to see how well I resist. As far as I can tell, he has never made the rabbit ears gesture behind my head or made silly faces. I suppose I don't really know but it doesn't feel like it. This test requires tr

It's been an eventful week. On the 15th February 2024, I received an email from Norfolk County Council's Blue Badge Unit to let me know that my application had failed. The refusal was summarised in three bullet points: You do not have a level of qualifying disability or functional loss to be eligible for a Blue Badge. You state that you are able to walk in excess of the Department for Transport’s eligibility criteria. The symptoms of your condition(s) are variable in nature and therefore do not have a substantial and permanent impact on your mobility. I should explain that a blue badge in this case refers to a paper disc that one can display in the windscreen of one's vehicle to indicate a disability that qualifies for use of disabled parking spots in the UK. The first email I have from the Blue Badge Unit is from September 2023 although the saga has run on longer than that. I h

I used to think that the surest way to kill a conversation was to announce "I work in Computing." Panic would grip my respondent and their eyes would dart around the room like a trapped animal. "Err, I'm just going to get another drink," they might say after hastily draining their glass. They would slope off before latching onto someone (anyone) else. I was wrong. There were occasions where somebody had a problem that they thought I might be able to help with so we would talk for a while at least. In my last blog entry I described how Parkinson's was affecting my concentration and how that was making it difficult to do my job. At the time I was hopeful that I would be able to push through those problems and persevere but it hasn't turned out that way. I've been off sick for some time now as we seek a resolution. I keep busy by doing stuff around the house and garden (you probably would not believe m

Parkinson's is changing my brain. There are a lot of gaps in our knowledge of how Parkinson's works but that observation has been established for some time and is kind of taken as read. To try and keep this blog light-hearted I often focus on positive things that are going on in my life. A new thirst for creativity has become a recurring theme. It is really positive and I have enjoyed following the path it has taken me. Recently, I've been pausing a little to look back along that path to try and make sense of some problems that are affecting me at work and work out why things aren't altogether hunky-dory. My work suffered badly immediately after my diagnosis. I read lots of good advice about strategies for coping with PD and I told myself that I wouldn't let it slow me down but there was a part of me that just waved a white flag and gave up. I think I have mentioned before a weird sense of relief that came with the diagnosis. I s

Fingers slowly turned to stone, The seed already sown, Today, I see it full grown, A companion I’d rather not known, A life popping pills, Just to try and stay still, To witness the thrill, Of a drink unspilled, Drifting, Reality keeps on shifting, Systems slow, gears grind, A shadow clouds my mind, Well, things could be worse, I had the foresight to marry a nurse, I can still code, When my thoughts finally load, I can live with the dreams (so vivid), A pack of wolves, ran off with my tools. Wild? I was livid, Drifting, Reality keeps on shifting, I’ll be back from the deep, Just need a little sleep.

Since being diagnosed with Parkinsons I have been touched by how many friends and family have donated to and raised money for Parkinsons related charities. At some point I made a mental note that I should return the favour for another charity one day. As the new year dawned I checked my Facebook feed and up popped a challenge from Diabetes UK: UK Wide Cycle Ride . The idea is that you choose a distance that would take you from one side of the country to another and to spend April accumulating miles toward that total and to gain sponsorship as you work towards that goal. I hadn't come across it before but I think a lot of charities also do something similar. Image by Ricarda Mölck from Pixabay Anyway, I hadn't made any New Year's resolutions, I've always enjoyed cycling and I've seen the serious impact that diabetes can have on families so I signed up albeit for the shortest available distance: 120 miles. That wo

For months, maybe years, after I was diagnosed with Parkinsons Disease I picked at my memories trying to determine how and when I developed it as if I could go back in time and change it. It is a completely pointless exercise since current research is unclear whether the cause is genetic or environmental . I have mentally dismissed the genetics component so that I don't have to contemplate the implications for my children. That leaves me with plenty of scope for trawling through all the stupid things that I have done in my life that might have been the decisive environmental factor. Could it have been the time when, after an all day drinking session I fell into a deep sleep while I was sat on a bar stool? I toppled backwards, still asleep and my fall was broken by the back of my head hitting the corner of the skirting board. Head injuries do seem to be quite a common factor in the development of PD so its possible. That was 20 years ago and I was diagnosed only five years ago so t