"How are you doing? Lovely day isn't it?" I had been lost in a storm of competing questions not including the state of weather when I encountered this friend in the corridor. Sunshine apart, this was turning out to be well down the list of my favourite days. "Yes, it's nice isn't it?" I said. Back in the office another friend asked how my appointment had gone. "I've got Parkinson's". "No, you haven't". From an early age we learn to look on the bright side and reassure each other that everything is going to be alright. We are less prepared for the occasions where a situation is not going to improve but we all need to have those conversations at various points in our lives. I had the conversation with my family that evening and I was touched by their love and support. We talked about the pros and cons of letting work know. British law tries to protect the disabled from workplace discrimination for examp...
My neurologist is a very nice man. He listens well and is faultlessly polite. It is the sort of job where compassion and good observation are called for and he has both in abundance. I think we get on pretty well. At each appointment he asks me to run through a series of exercises to see how my Parkinson's is progressing. There's "play the piano" - hold your hands level and wiggle your fingers as if playing an imaginary keyboard. The Neurology pianoes were never going survive Andrew Lansley's sweeping NHS reforms as part of David Cameron's government's austerity measures and there is a slight downward trend in the number of organ donations in the UK. In another test he stands behind me and pulls me backwards to see how well I resist. As far as I can tell, he has never made the rabbit ears gesture behind my head or made silly faces. I suppose I don't really know but it doesn't feel like it. This test requires tr...